Being a parent to a blessing with autism has spurred on a local mother learning just how challenging it can be to juggle work, home and life with a special-needs toddler, to establish a network of support for fellow parents and caregivers with children on the spectrum.
Rahkeenah Peters, a 38-year-old mother from Strand, admits to being completely oblivious to the developmental disability until it became her reality when her three-year-old daughter was diagnosed with autism last year. “I had heard of autism, but never felt the need to read up on the topic and familiarise myself with it, its symptoms and effects until I had to following my daughter’s diagnosis. Now researching autism is continuous effort.”
Peters, a working mom of four, shared the overwhelming impact of raising a child with autism. In her case her youngest, who is non-verbal, also battles sensory sensitivities.
“Often, it is stressful and exhausting to meet the complex needs of a child with ASD. Quality time as a couple is hard to carve out. Siblings are affected as they get less attention. Family outings are few and far between. But equipping ourselves with the necessary knowledge after finding out why she is the precious soul she is and getting help early on has made a world of difference, and our daughter is thriving.”
Aware some of the challenges can lead to bigger issues, such as depression, anxiety, frustration, lack of self-care, financial challenges and even stigmatisation (as not everyone is sensitive, kind or accepting), Peters started a WhatsApp group last month (April) hoping to engage other parents who are on the same life-altering journey. The group serves as a platform where members, of whom there are already about 10, can safely and without judgement share experiences, frustrations and thoughts, address common concerns and gain support, understanding, validation and friendship.
“The group will hopefully help improve the quality of life for parents and their children,” Peters explained, “and through shared insights allow a better understanding of autism and the opportunity to learn of various new ways of dealing with daily challenges, as well as to promote and build awareness.”
With hopes of extending the social media group into actual meetings with experienced and qualified facilitators, Peters hosted a get-together as a meet-and-greet with parents and their beautiful blessings at her Naomi Street residence.
“It is important that parents journeying alongside their children with autism know they don’t have to go through this journey alone,” told DistrictMail & Helderberg Gazette at the special gathering.
“Together we can help break the feeling of isolation that many parents of autistic children face.
“God has chosen us to be advocates for autism. Your child has a special talent and is a gift. Although at times you may feel discouraged and may have mixed emotions, with patience, prayer, education and understanding, things will get better and you will find your way.”
