This non-profit organisation, founded in 1974 by the Walker family, was born out of a personal journey. Their son was affected by Duchenne muscular dystrophy, and together with Wally Gough, chair of the Rotary Club of Potchefstroom and representatives of the Cripple Care Association, they established the foundation.
Today, the Muscular Dystrophy Foundation of South Africa has grown to include a national office and three branches located in Roodepoort, Cape Town and Durban, serving all nine provinces of South Africa. The Foundation is dedicated to supporting individuals affected by neuro-muscular disorders and their families, providing them with informative and supportive services.
50th anniversary
To commemorate their 50th anniversary, the Cape branch of the Foundation hosted a celebratory meal at Wimpy, inviting stakeholders and clients to join in the festivities. Samantha Muller, a social worker at the foundation, expressed her joy at the event’s success, noting the wonderful attendance despite the challenges of gathering during the cold winter months. The staff’s collective effort in planning and implementing the event contributed to its success.
Among the attendees was Athule Ngqentsu, a 21-year-old Cape Town resident living with spinal muscular atrophy type 2. Athule’s story is a powerful testament to the foundation’s impact. Despite her physical mobility challenges, Athule has never let her disability define her. With the foundation’s support, she has blossomed into a confident and talented individual.
‘Athule’s journey’
At just 14, Athule joined RX Radio, an inclusive broadcasting platform at the Red Cross Children’s Hospital, where she shared her experiences living with a disability and discovered her passion for storytelling. Her recently published memoir, Athule’s Journey, chronicles her remarkable story of overcoming adversity and achieving her dreams. The book is a testament to her resilience and determination.
Last year, Athule graduated from AFDA Film School Cape Town Campus with a degree in performing arts, a feat she considers one of her greatest accomplishments. Her story serves as an inspiration to all, showcasing the incredible achievements possible with the right support and mindset. For those interested in reading more about Athule’s inspiring journey, her book Athule’s Journey is available for purchase. You can contact Athule directly at 081 488 3019 to get a copy.
‘New perspective’
The Muscular Dystrophy Foundation of South Africa continues to make a profound impact, and its 50th anniversary celebration is a testament to its enduring commitment to supporting those affected by neuro-muscular disorders. Lee Leith, the chair of the foundation, says the social workers go out to clinics, hospitals and special needs schools to provide support and information to clients, and have support groups at the office.
This for her is what makes the foundation successful, the fact that professional help and information is given to people. She adds: “30 years ago people would not have known what muscular dystrophy is, but now new perspective can be shared about the disorder.”
