{"id":52104,"date":"2023-08-25T06:00:48","date_gmt":"2023-08-25T04:00:48","guid":{"rendered":"https:\/\/novanews.co.za\/paarlpost\/help-klein-ben-met-n-nuwe-lewe-vorentoe-20230823-2\/"},"modified":"2025-03-20T04:09:42","modified_gmt":"2025-03-20T02:09:42","slug":"help-klein-ben-met-n-nuwe-lewe-vorentoe-20230823-2","status":"publish","type":"post","link":"https:\/\/novanews.co.za\/paarlpost\/help-klein-ben-met-n-nuwe-lewe-vorentoe-20230823-2\/","title":{"rendered":"Help klein Ben met \u2019n nuwe lewe vorentoe"},"content":{"rendered":"\n

Vir 14 jaar al lewe die brawe jong Ben Klopper met \u2019n swaard oor sy kop van \u2019n ongeneeslike genetiese siekte. En die enigste hoop vir die jongman om \u2019n langer en meer normale lewe te voer, gaan tussen R400 000 en R800 000 per jaar kos.<\/p>\n\n\n\n

Ben, \u2019n gr. 8-leerder aan Hugenote Ho\u00ebrskool, se baie moeilike reis het reeds by geboorte begin met \u2019n diagnose van meconium ileus,<\/i> \u2019n seldsame derm-obstruksie, wat onmiddellik n\u00e1 geboorte geopereer moes word. <\/p>\n\n\n\n

Kort daarna het sy ouers, Bennie en Nicolene, nog erger nuus ontvang toe sistiese fibrose, \u2019n ongeneeslike genetiese afwyking wat verskeie organe, veral die longe, be\u00efnvloed, by hom gediagnoseer is. Om met sistiese fibrose te leef, beteken om daaglikse uitdagings in die gesig te staar, s\u00ea sy pa, Bennie. <\/p>\n\n\n\n

\u201cDit was nog altyd \u2019n uiters moeilike pad vir Ben. Om met sistiese fibrose te leef, beteken om daaglikse uitdagings in die gesig te staar.<\/p>\n\n\n\n

\u201cSy lewe is \u2019n siklus van nebuliserende behandelings omdat dik slym Ben se lugwe\u00eb belemmer, wat asemhaling soortgelyk maak aan inasem deur \u2019n strooitjie, die verteer van honderde ensiempille en die bestuur van verskeie medikasies. Hospitalisasies, herhalende infeksies en gemiste skooldae is deel van sy realiteit. Sistiese fibrose is onverbiddelik, en Ben se stryd is ons gesin se daaglikse realiteit.<\/p>\n\n\n\n

\u201cHy is as\u2019t ware gebore met \u2019n doodsvonnis waarteen hy en ons elke dag baklei.\u201d<\/p>\n\n\n\n

Met aanhoudende navorsing deur die jare oor ontwikkeling in behandelings vir die siekte, het \u2019n ligstraal van hoop onlangs vir die Klopper-gesin verskyn. Dit is in die vorm van Trikafta, \u2019n baanbrekende middel wat deur \u2019n Amerikaanse mediese firma, Vertex, ontwikkel is. <\/p>\n\n\n\n

Hierdie medikasie verbeter longfunksie, help gewigstoename en verhoog energievlakke vir diegene met sistiese fibrose.<\/p>\n\n\n\n

Hierdeur verleng dit die pasi\u00ebnt se lewe ook en gee hulle \u2019n baie beter lewensgehalte.<\/p>\n\n\n\n

Ongelukkig is Trikafta buitensporig geprys \u2013 ver buite die Kloppers se bereik. <\/p>\n\n\n\n

\u201cN\u00f3g siekefondse n\u00f3g Vertex lyk bereidwillig om die middel in Suid-Afrika toeganklik te maak.\u201d<\/p>\n\n\n\n

Gelukkig is \u2019n alternatief beskikbaar \u2013 Trixicar, \u2019n meer bekostigbare weergawe, wat deur Gador in Argentini\u00eb vervaardig word. Tog is dit steeds nie binne die Kloppers se vermo\u00eb nie. <\/p>\n\n\n\n

\u201cOns staan ??by \u2019n kruispad en kyk hoe Ben se toestand dag vir dag vererger. Om hierdie agteruitgang te stuit, benodig ons Trixicar dringend, wat tussen R400 000 en R800 000 kos, afhangend van die dosis en wisselkoerse.\u201d <\/p>\n\n\n\n

Die medikasie sal ook nie ingevoer kan word nie, maar iemand sal dit self in Argentini\u00eb moet gaan haal.<\/p>\n\n\n\n

Nou reik die Klopper-gesin uit na die gemeenskap om hulp deur middel van die fondsinsamelingsplatform Back-a-Buddy.<\/p>\n\n\n\n

So kan mense help om hierdie lewensveranderende medikasie vir Ben te verseker.<\/p>\n\n\n\n

\u2019n Skenking, hoe klein ook al, kan \u2019n onmeetbare verskil maak. \u201cOns doelwit is om R400 000 in te samel om Ben \u2019n kans op \u2019n beter lewe te gee \u2013 \u2019n lewe met die geleenthede van \u2019n tipiese tiener.<\/p>\n\n\n\n

Elke skenking sal uitsluitlik toegewys word aan die verkryging van Trixicar, \u2019n kans om hierdie meedo\u00ebnlose siekte te vertraag. <\/p>\n\n\n\n

\u201cOns is innig dankbaar vir enige ondersteuning wat jy kan bied. Jou bydrae het die krag om Ben se lewe te transformeer, wat hom die moontlikheid bied van \u2019n beter, gesonder toekoms.\u201d<\/p>\n\n\n\n

Diegene wat wil bydra tot hierdie veldtog om Ben te help: https:\/\/www.backabuddy.co.za\/champion\/project\/ben-klopper<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Vir 14 jaar al lewe die brawe jong Ben Klopper met \u2019n swaard oor sy kop van \u2019n ongeneeslike genetiese siekte. En die enigste hoop vir die jongman om \u2019n langer en meer normale lewe te voer, gaan tussen R400 000 en R800 000 per jaar kos.<\/p>\n","protected":false},"author":20,"featured_media":52106,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_yoast_wpseo_linkdex":"","_yoast_wpseo_content_score":"","_yoast_wpseo_inclusive_language_score":"","_yoast_wpseo_is_cornerstone":"","_yoast_wpseo_canonical":"","_yoast_wpseo_opengraph-title":"","_yoast_wpseo_opengraph-description":"","_yoast_wpseo_opengraph-image":"","_yoast_wpseo_opengraph-image-id":"","_yoast_wpseo_twitter-title":"","_yoast_wpseo_twitter-description":"","_yoast_wpseo_twitter-image":"","_yoast_wpseo_twitter-image-id":"","newspack_ads_suppress_ads":false,"newspack_sponsor_sponsorship_scope":"","newspack_sponsor_native_byline_display":"inherit","newspack_sponsor_native_category_display":"inherit","newspack_sponsor_underwriter_style":"inherit","newspack_sponsor_underwriter_placement":"inherit","_crsspst_to_novanewscoza":false,"_crsspst_to_novanewscozabloemnewsexpress":false,"_crsspst_to_novanewscozacityvision":false,"_crsspst_to_novanewscozadistrictmailhelderberg":false,"_crsspst_to_novanewscozaeikestadnuus":false,"_crsspst_to_novanewscozahermanustimes":false,"_crsspst_to_novanewscozakomani-karoo":false,"_crsspst_to_novanewscozakougaexpress":false,"_crsspst_to_novanewscozamthathaexpress":false,"_crsspst_to_novanewscozanoordkaapbulletin":false,"_crsspst_to_novanewscozapeexpress":false,"_crsspst_to_novanewscozapeoplespost":false,"_crsspst_to_novanewscozaswartlandgazette":false,"_crsspst_to_novanewscozatygerburger":false,"_crsspst_to_novanewscozaudexpress":false,"_crsspst_to_novanewscozavistanews":false,"_crsspst_to_novanewscozavrystaatkroon":false,"_crsspst_to_novanewscozaweskusnuus":false,"_crsspst_to_novanewscozaweslander":false,"_crsspst_to_novanewscozaworcesterstandard":false,"_EventAllDay":"","_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":"","_EventShowMapLink":"","_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":"","_EventVenueID":"","_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":"","_VenueShowMapLink":"","_application":"","_batch_id":"","_company_name":"","_company_tagline":"","_company_twitter":"","_company_video":"","_company_website":"","_custom_id":"905c9da7-a7db-4a2b-8c36-325e9215eb93","_EventDuration":"","_EventOrigin":"","_EventTimezoneAbbr":"","_featured":"","_filled":"","_job_expires":"","_job_location":"","_media_credit":"","_media_credit_url":"","_menu_item_menu_item_parent":"","_menu_item_object":"","_menu_item_object_id":"","_menu_item_target":"","_menu_item_type":"","_menu_item_url":"","_menu_item_xfn":"","_navis_media_can_distribute":"","_navis_media_credit_org":"","_OrganizerOrigin":"","_provider":"","_pum_built_in":"","_pum_default_theme":"","_pum_form_conversion_count":"","_remote_id":"","_remote_name":"","_remote_position":"","_report_frequency":"","_report_reference_dates":"","_send_attempts":"","_site_id":"","_sitemap_exclude":"","_sitemap_frequency":"","_sitemap_priority":"","_source_url":"","_subscription_period":"","_subscription_period_interval":"","_subscription_price":"","_tec_slr_enabled":"","_tec_slr_layout":"","_template_type":"","_ticket_end_date":"","_ticket_start_date":"","_tribe_aggregator_allow_multiple_organizers":"","_tribe_aggregator_content_type":"","_tribe_aggregator_file":"","_tribe_aggregator_finalized":"","_tribe_aggregator_hash":"","_tribe_aggregator_import_id":"","_tribe_aggregator_import_name":"","_tribe_aggregator_interactive":"","_tribe_aggregator_origin":"","_tribe_aggregator_post_status":"","_tribe_aggregator_preview":"","_tribe_aggregator_source_name":"","_tribe_aggregator_type":"","_tribe_default_ticket_provider":"","_tribe_hide_attendees_list":"","_tribe_rsvp_for_event":"","_tribe_ticket_capacity":"","_tribe_ticket_header":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":"","_tribe_ticket_version":"","_type":"","_VenueOrigin":"","_wp_attachment_context":"","_wp_attachment_image_alt":"","_wp_font_face_file":"","_wp_old_date":"","_yoast_wpseo_estimated-reading-time-minutes":"","_yoast_wpseo_focuskeywords":"","_yoast_wpseo_focuskw_text_input":"","_yoast_wpseo_keywordsynonyms":"","_yoast_wpseo_primary_block-catalog":"","_yoast_wpseo_primary_category":"","_yoast_wpseo_primary_job_listing_type":"","_yoast_wpseo_primary_nova_retailer":"","_yoast_wpseo_primary_publication":"","_yoast_wpseo_primary_tribe_events_cat":"","_yoast_wpseo_videositemap-duration":"","_yoast_wpseo_videositemap-rating":"","_menu_item_classes":[],"_tribe_modified_fields":[],"_wp_attachment_backup_sizes":[],"_wp_suggested_priv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klein Ben met \u2019n nuwe lewe vorentoe | Paarl Post<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/novanews.co.za\/paarlpost\/help-klein-ben-met-n-nuwe-lewe-vorentoe-20230823-2\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Help klein Ben met \u2019n nuwe lewe vorentoe\" \/>\n<meta property=\"og:description\" content=\"Vir 14 jaar al lewe die brawe jong Ben Klopper met \u2019n swaard oor sy kop van \u2019n ongeneeslike genetiese siekte. 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Volgens sy\u2026","rel":"","context":"In "News"","block_context":{"text":"News","link":"https:\/\/novanews.co.za\/paarlpost\/news\/"},"img":{"alt_text":"Lemarsh Blanckenberg","src":"https:\/\/i0.wp.com\/novanews.co.za\/paarlpost\/wp-content\/uploads\/2026\/06\/WhatsApp-Image-2026-06-04-at-10.46.34-e1780569735592.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/novanews.co.za\/paarlpost\/wp-content\/uploads\/2026\/06\/WhatsApp-Image-2026-06-04-at-10.46.34-e1780569735592.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/novanews.co.za\/paarlpost\/wp-content\/uploads\/2026\/06\/WhatsApp-Image-2026-06-04-at-10.46.34-e1780569735592.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/novanews.co.za\/paarlpost\/wp-content\/uploads\/2026\/06\/WhatsApp-Image-2026-06-04-at-10.46.34-e1780569735592.jpg?resize=700%2C400&ssl=1 2x"},"classes":[]},{"id":108304,"url":"https:\/\/novanews.co.za\/paarlpost\/danni-vleg-haar-pad-na-sukses-oop\/","url_meta":{"origin":52104,"position":5},"title":"Danni vleg haar pad na sukses oop","author":"Chantelle Hartebeest","date":"31 March 2025","format":false,"excerpt":"Wanneer jy 'n droom het en met jou passie en wilskrag onder dit vuur maak om uit te styg, sal jy suksesvol wees. Die plaaslike haarstilis Danielle \"Danni\" Johannessen se verhaal is 'n bewys hiervan. Met haar vasberadenheid l\u00ea 'n lang rooi tapyt vol suksesse vir haar voor. Di\u00e9 22-jarige\u2026","rel":"","context":"In "Business"","block_context":{"text":"Business","link":"https:\/\/novanews.co.za\/paarlpost\/business\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/novanews.co.za\/paarlpost\/wp-content\/uploads\/2025\/03\/DanniJohannessen-_08943.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/novanews.co.za\/paarlpost\/wp-content\/uploads\/2025\/03\/DanniJohannessen-_08943.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/novanews.co.za\/paarlpost\/wp-content\/uploads\/2025\/03\/DanniJohannessen-_08943.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/novanews.co.za\/paarlpost\/wp-content\/uploads\/2025\/03\/DanniJohannessen-_08943.jpg?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/novanews.co.za\/paarlpost\/wp-content\/uploads\/2025\/03\/DanniJohannessen-_08943.jpg?resize=1050%2C600&ssl=1 3x"},"classes":[]}],"distributor_meta":false,"distributor_terms":false,"distributor_media":false,"distributor_original_site_name":"Paarl Post","distributor_original_site_url":"https:\/\/novanews.co.za\/paarlpost","push-errors":false,"_links":{"self":[{"href":"https:\/\/novanews.co.za\/paarlpost\/wp-json\/wp\/v2\/posts\/52104","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/novanews.co.za\/paarlpost\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/novanews.co.za\/paarlpost\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/novanews.co.za\/paarlpost\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/novanews.co.za\/paarlpost\/wp-json\/wp\/v2\/comments?post=52104"}],"version-history":[{"count":0,"href":"https:\/\/novanews.co.za\/paarlpost\/wp-json\/wp\/v2\/posts\/52104\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/novanews.co.za\/paarlpost\/wp-json\/wp\/v2\/media\/52106"}],"wp:attachment":[{"href":"https:\/\/novanews.co.za\/paarlpost\/wp-json\/wp\/v2\/media?parent=52104"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/novanews.co.za\/paarlpost\/wp-json\/wp\/v2\/categories?post=52104"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/novanews.co.za\/paarlpost\/wp-json\/wp\/v2\/tags?post=52104"},{"taxonomy":"newspack_spnsrs_tax","embeddable":true,"href":"https:\/\/novanews.co.za\/paarlpost\/wp-json\/wp\/v2\/newspack_spnsrs_tax?post=52104"},{"taxonomy":"publication","embeddable":true,"href":"https:\/\/novanews.co.za\/paarlpost\/wp-json\/wp\/v2\/publication?post=52104"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}